Pity Party of One Update

I update the Facebook daily but this blog is meant to update or keep informed more then a quick status. So these I'll just be doing weekly or if I have an update that is needed. Just wanted to use this blog to vent for a second but to update everyone on what Karmanos has told me.

Karmanos

So  after dealing with Henry Ford my meds were cut back and I had a seizure as a result. The appointment at Karmanos I got sicker and sicker and eventually was put on iv meds for 4 different medicines. They pumped me full of fluids, Zolfran which is awesome! Along with some of my other drugs. After I had to recover for two days but left great still do. Since I was so sick we had to remeet the dr and I got see more then his shoes this time!

So chemo meds were started on Tuesday and I have tolerated them well thus far. As of right now I take more medicine then I ever have in my life but they help so we will go with it. I do my essential oils too, that will be a blog in itself. But with everything I just rely on the big man upstairs.

Pity Party of One

So I have cancer for the second time. It sucks, makes me mad, makes me want to throw stuff but at the same time I have the attitude of bring it. Adversity in life happens, how you deal with it is everything. I honestly believe people handle things one of two ways. Either you deal with it headstrong or you fizzle off and die. So many times I have see people flat give up on things that I would consider trivial or I have seen seen people use their determination to rule the world and beat cancer. Myself I just chose to overcome this obstacle I am facing the same I always have, head on and with determination.

I know when people here I have stage 4 Melanoma that has spread through my body first thing they think is well she's on her deathbed. I am nowhere near my deathbed and I'm sure that makes my enemies upset but I don't care frankly. With the advancements of Melanoma research (new drug being approved next month for example) there is no need to boohoo as I will be here. The medical team seems to think this will work. The medicine they are giving me is approved by the FDA and the results from the study are huge. Who wants 70% reduction in tumors in 3 months? That would this lady over here. The research is promising so don't cry for me because I am too much of a broad to go anywhere.

People ask how do you stay positive? How do you stay so strong? How do you not curl up and want to die because I would?  It's a combination of things. Yes curling up and dying could be a option but what does that serve? I have a 4 month old child that would just teach her mommy is weak. The goal is to raise this child for greatness how can I do that when I am crying and a hot mess in the corner of a room? So here is what I have chosen to do.

I have chosen to do is to live life to the fullest. My daughter needs me on a daily basis not just on holidays. She needs me to feed her,rock her, assure her I'm ok she's ok and everything else mothers do. When I am sick she knows it so I got to stay well so she knows that everything in the world is fine and she's safe. Biggest thing is relying on my faith. Not everyone is a believer but I have decided to bury myself in faith, prayer and believing in a higher purpose to all this. As the verse says "I can do things through Christ which strengthens me." Philippans 4:13). This verse and the Serenity prayer have been the two things I have been holding on to when I waver in faith.

So for me I don't see this diagnosis as in a death sentence it is merely a bump in the road. Either way I choosing to live life with grace and dignity for how ever long that maybe(we going for 50 years or something longer).

So how can I help

This one is another I get and frankly I don't have a cool or good enough answer. I just ask for prayers because everything will be provided in one way or another. As of right now I can do things for myself and daughter but as the chemo goes on who knows. Weak and tired are the two side effects but not on deathbed yet. If I can think of away I need help I'll mention it. But main thing prayers,motivation and salutations are the biggest things right now.


Thank you and God Bless

Stephanie and Emberley

Hello World Backstory

So I thought a Facebook Fan Page would be all that I needed, eh wrong. With a news feed that is pages and pages deep a lot of people had no clue and still don't of what's going on. So here's the back story.

In 2009 I had stage 2 Melanoma that was successfully removed, completed chemo for six months, had the surgery that was needed and was sent on my merry way. Fast forward to 2013. I had my daughter in February and was going about life.  Then May 20th happened.

I was sitting in my living room chair watching tv, holding my daughter when I started staring at the fan like hello Mr. Fan. Anyways I end up having a catatonic seizure and things got weird from there. Tried to talking but everything was jumbled and all I could say was no and yes. So I wrote on a piece of paper Stroke or Seizure? We went to the hospital where my senses were coming back slowly. After having a CT scan all of a sudden I had a Grand Mal seizure and my heart stopped. Yikes!

They revived me obviously but I had no idea the extent of what was going on. Turns out the Melanoma is back. Like really really back and not good. After I was stabilized they rushed me to Henry Ford Main downtown into ICU for 24 then put me on the Oncology wing after that. I was in the hospital for five days and so out of it that I didn't understand the severity of the situation until about a week into the ordeal. So here's what is going on:

I have stage 4 Melanoma that has metastasized to my brain, lungs, chest wall and a tiny speck on my liver. In my brain I have 40+ inoperable tumors, 4 in my chest, 1 in my chest wall and one on my liver. There is no stage 5 people. Things just got real.

Everyone keeps asking about life expectancy, my oncologist had the best answer. "I'm not God!" Truthfully that is the best answer because well he kind of isn't. So at this point it is all about enjoying life to the fullest and go from there. Decided any stressors at this point in life are not worth it. Sweating the small stuff does not matter.

So now what?

Radiation will be complete tomorrow and then on to chemo once I can get an appointment at Karmanos or Henry Ford. Not sure what form it will be in once I know I will tell everyone.

How you can help?

Everyone keeps asking how they can help. At this point I just request healing prayers nothing more. It's a difficult painful journey so anything uplifting via prayer is highly needed. Send me inspirational quotes on Facebook or something like that. 

In due time

Everything happens for a reason and in due time this diagnosis will make sense, hopefully. However, with that being said I am going to finish this first installment of my blog.